OK I’m Feeling a little better

OK I’m feeling a little better not much. As most of you know I’ve been really really sick the past week i havnet been online or anything. a fsat catch up on what going on here. JuJu’s heart is doing great we dont see the heart doc for a year now. We still have the jung thing to deal with. We are in the prosses of changing schools because i found ut 1. theres no bus aid on the big bus in the mornings the lady at the bus stop her son got his head pushed into the window. 2. her soon got jumped in the schools bathroom and theyre resonds was we dont have enough ppl to monitor the bathrooms. so my nabor work at a school that will meet jujus needs and should give juju special bus pickup and drop off due to her condition. oh um I got a promotion and a raise 2 fridays ago. Yah me! well nothing much else is going on just tring to get rid of this cold or what ever it is thats kicking me in the butt. well till next time.

1st day back to work :(

Well it was coming 1st day back to work. I have to admit it felt nice it wasn’t like I expected things were ok. JuJu knew I was going to work and she was ok when I left which was amazing since she hasn’t left my side since we got home. I felt bad but we need money very bad. I was in contact with gramma all day checking on here she was great. Very clingy to Billy. She was happy to see me when I came home. Her face lite up and eyes wide open. The lung doctor called me at work we will be seeing her in jan. to discuss the lung dissese she has. Im not looking foward to it. It seems we get out of one bad fight into another. But I will never give up because JuJu never gives up. Everyone that has spent some time with JuJu says she is a different little girl now. I have to agree she is. I just want to say thank you to everyone that has stood by me and helped in many ways. JuJu puts a smile in everyones heart even when the chips are down for her. We all love you Juliette.

BIG NEWS

Our website now has a guest book for you to sign and also a picture page its so awsome you must see and soon I will set it up for you to upload pictures. So in the next few day I will be puting up alot of pictures and some of you know I love taking pictures. So keep looking and you see alot of changes going on with the site. Thanks again Shannon your awsome !!!!!!!!!

JuJu had a wonderful day she was very happy today. She also desided she didn’t need the dressing on her main stich I caught her taking them off. but shes ok i is healing fine. You can see archives of her on our JTV site. ok well don’t forget the new ite is http://www.djnjuju.com

later

1st Checkup Went Well

Had our first checkup today it went well until it came time to take off the chest tub dressing. But after what she’s been through I can’t blame her for screaming the way she did. I feel so bad for giving her any more pain than she has already gone through. It had to be taken off though. She is doing good Dr. Orie said everything is the way it should be right now. I just have to keep her calm. That’s a chore in a half. She is getting very excited about Christmas when she sees Santa on tv. She has already taken some stuff off the tree to play with. I thought she would be fine and not do that this year but oh well. I’m making homemade chilli for dinner she like chilli. Ok well just thought I would let everyone know how the 1st checkup went. Please send the link to her Christmas donation page to as many people as you can.

http://www.senecaoutlet.com/dj/donate.html

First Of Many Checkups

Last night as some of you watched on the lifecast we did the tree and hung lights up still have a few more lights to hang up. Today we have our first of many checkups. I know we will be changing the dressings today so its going to be a screaming day. Granpa is taking us so I will have help I hope controling her. She doesn’t know I told her this morning we were going to see Dr. Orie she didn’t think anything o it so. We will see when we get there. I need to clean today and get some shopping done today. The Boss only gave me $120.00 like thats going to go far. I don’t know when I will be able to leave her with someone without her getting very upset. I don’t think I could leave her just yet either. But anyhow I would like to thank some very special people that have come in day after day to check on us in our lifecast chatroom. It means alot not to just juju but me also. well going to get things going here so I will let you know how the checkup went. Later

Time To Relax Finaly

We are finaly home. it is 7:27 and I want to thank my sister, niece for helping me clean and get this place ready for JuJu to come home. I also want to thank Paul and Billy for helping me get JuJu home and really coming through when I needed help. Ok well I ordered pizza for dinner JuJu was asking all week for it and I’m Going to spend time with her. Later

I Feel Better Now.

Grandma showed up this afternoon. It was so nice Juliette’s face light up so much. It made me feel so great to see her smiling and talking to grandma.  Grandma is so very nice she asked JuJu “if daddy can go for a walk with grandma?” JuJu said OK sure 1 minute and come back. LOL we laughed so hard but she didn’t know grandma was taking me for lunch which was so so nice I was hungry. THANKS GRANDMA!! JuJu is doing great today she is down to 70% ox. Her chest tub does not have any drainage today They will be looking at it to make sure it’s not block just to make sure. She was in a chair when I arrived from the hotel. She was so happy to see me and she was so excited. Almost made me cry in happiness. I had got her a magnet drawing board and a soft marker set that only colors on special paper. She was so happy. LOL She told me good job dad and said I’m so happy I love you dad. OMG she is changing. They think she may have a lung disease though that’s why her pulse ox remains low. She has different signs that are pointing to it. The lung doctor will be looking at her lung cat scan after the holidays. So its a waiting game for that. but other than that I sitting here in the private waiting room because JuJu is resting nice. I got thank you cards for all the nurses that have been taking GREAT care of our JuJu. You know how JuJu can be and they put up with it. They are so wonderful With her and I. Wish I could do more but it’s all I can right now. I have about $50.00 left in the bank now so money is really getting down there. Anyhow I’m going to get going do some other work. I’ll keep in-touch. later

A Little Upset But I’m Ok

I’m ok I was Just a Little upset yesterday that me and Juliette had to spend thanksgiving in the hospital alone. everyone else had visitors all day. I spent most of the day with JuJu with the curtins almost closed. about 10:30 Uncle Paul, Uncle Billy, Kim, and Grampa come to see us. Them coming made me feel better and I know it made JuJu fell better. I know everyone had the family thing todo and I might be just mking a big deal out of it. I’m sorry I’m just getting tierd and want to get beack home andback to our life. I think When we come home we will put up the tree and stuff she will like that. Also I want to Give a BIG BIG THANK YOU TO PAUL, BILLY FOR $200.00 THANK YOU GUYS… ok well I’m going to get ready and check out and walk to the hospital soon. I will let you guys know the status. later

We Are Sitting In A Chair

Yaaaa! We are sitting up in a chair today. Ckeck out the live feed …. CLICK ON THIS TEXT TO SEE VIDEO

Todays Goals

I’m here at the hospital didnt takke long to get here from the hotel. I came staight up didn’t even stop for coffee. (Believe that?) I seen JuJu she was sleeping she is doing well. a new nurse is taking care of her today Karen is off. Today they are taking some tub out im not sure witch one. thy want to get her to eat more today. They are going to work on geting her up and moving a little and hopefully sit up in bed. I know she had a long night and didn’t get alot of sleep so. The lung dr. called me at the hotel ust before I left she was asking alot of history questions but she had to hurry and run home so she can cook dinner. She saaid she will be looking at the catscans and try to figure out whay her paulse ox is low when it shouldn’t be. after this I am going to go se JuJu. I have a news paper from the hotel that I brought her, she like news papers she pretens to read them like you or I do. It’s cute. hopefully I might get a picture of her to post. I’m going to be adding the donation link to the blog today to make it easier to donate. some people on the lifecast last night where asking were to go so they can donate. Well all Happy Thanksgiving Remeber to be thankful for everything you have and everyone you have.